Formerly "Selena's Breast Cancer Journey," this is my blog about my fight with Stage IIIa Invasive Ductal Carcinoma. I was diagnosed on June 9, 2008. I have been keeping this journal as a way to let my friends and family know what is going on with me. Now that I am moving PAST and through the cancer experience...
Saturday, August 30, 2008
Mum again
I took you'al advice and made brownies tonite. Chocolate, chocolate yum! It made ME feel better. Also good to talk to my friend Sandy, couldn't do without you girl!!
Gustav is looming and we made plans to go to Houston to stay with Michael and Donna Mitchell but we are waiting till tomorrow to see which way he is heading? We won't evacuate unless we have to do so. Chris is worrying about being without electricity and with Selena's compromised imune system becoming ill soo.... I did go out to the library and stocked up, also filled up the small car with gas in readiness.
Chris got me an Ipod. Yes I now have a purple Ipod and yes I am using it. Chris put one of Alexander McColl Smith's books on it that I had not read and I am again walking with Mma. Romotswe and her #1 detective agency.
They will drag me into the electronic age protesting all the way but getting there anway.
New blogger
My cute hat
Thursday, August 28, 2008
Errand Boy
Tuesday, August 26, 2008
Mum land
became sick and has been in zombie land ever since.
Chris has been experiencing a meningitis attack and zombies around Selena. I do my own form of off and on zombing, knitting, reading and of course eating.
Today I finally got my Texas nursing liscence. So can work here if I stay. Home is beginning to look awfully good now that I have been away sooo long. Miss my job and my friends in Florida.
So all depends upon how things go with the zombies and how work prospects are now. I keep finding more reasons to like this area.
I did get a library card and a local bank account with cheques. Now to generate something to put in it.
Selena starts a weekly chemo on Sept5 and that goes right up to Thanksgiving. We are hoping that it will not be as bad on her. Nurses at the infusion center say that it varies greatly and she may be very well or terribly sick.
I have been fascinated by the Twilight books and am listening to the newest one Breaking Dawn now. If any of you haven't tried them yet they are a "must read".
More later D
Apologies to all Republicans
Sunday, August 24, 2008
Been a long time since I rock and rolled....
Let's all pretend that was in my VERY best impression of ROBERT PLANT. Gotta love the Led.
Wednesday, August 20, 2008
What is coming
The doctor promised me (again) that this drug is much more easily tolerated.
Tuesday, August 19, 2008
It's me...
Tomorrow I have an appointment with Dr. Markowitz to make sure things are going OK and I'm ready for my last round of AC chemo. Chemo is on Thursday and Neulasta on Friday -whoo hoo. I'm glad to be almost through this part. I'm tired of being tired. There is a limit to the amount of sleep one can trick themselves into enjoying. The drugs do give me some fantastical dreams...
The ear infection and thrush are gone and the sore throat was just a one day thing, so I'm sure I'll be cleared for this next round of chemo.
Chris shaved my head the other day and there is less and less to take off... patches mostly.
I love all the comments and e-mails, please keep em coming.
Monday, August 18, 2008
150 minutes
Sunday, August 17, 2008
Click above blue link to learn more about the worst natural disaster in the history of the United States. On September 8, 1900 a hurricane hit Galveston and completely submerged the island killing between 6000 and 10,000 people. It has made Galveston on of the most haunted cities in the country because of the untimely death of so many people. I researched our house after we bought it and proved that it had survived the storm. We have a plaque on the front of the house to commemorate this.
Saturday, August 16, 2008
Apology
OK. So I realized when I woke up this morning that the purpose of this blog is not to give everyone a "What did you do today, honey?" perspective of our lives. I realize that you have limited amount of time to read and don't want to read my ramblings. When I 'Stunt Blog' from now on I will keep the posts focused on Selena and how she is feeling and dealing with cancer.
Friday, August 15, 2008
THIS WAS A REAL NICE CLAMBAKE
Thursday, August 14, 2008
Stunt Blogger
The producers felt that tonight's blogging was too dangerous for her to take part in so they called in a stunt blogger.
Tuesday, August 12, 2008
Cruising along...
This round of Chemo is kicking my butt. I've had to rely a little too heavily on the anti nausea meds and actually had a few bouts of vomiting... The joys of having your body awash in drugs! I just keep reminding myself that I am being HEALED. This will pass.
Been snoozing and listening to NPR a lot lately. I can drift off and then wake up to something, rinse and repeat. I have given up on reading. I took the books back to the library 'cause chemobrain won't let me concentrate. I was really enjoying those books and will have to pick them up again and find out how they end later. Getting ready to try audio books again, the drifting off might interfere with my retention, though. I'm trying Twilight.
Sorry for the lack of blog for a couple of days, they haven't been the best of times...
Friday, August 8, 2008
Chemo scare - port style
Good points: Mum went with me and we figured out how to keep the Popsicles frozen! It is a good idea to eat Popsicles during the "C" part of this chemo because it can cause mouth sores and burning - the cold keeps that from happening. Anyway, I dutifully ate and dripped and sucked on 3 Popsicles - I even got a rainbow of color drips on the blanket for them to remember me by. My guess here is that their laundry gets out much worse so I'm not such a terrible blanket ruining slob.
I'm in the middle of being summoned for all these trainings at my school. They did this last year, but I was out of town. MY SCHOOL YEAR is supposed to start on August 18!!! On the 31st we had an all day training, and I am supposed to attend one all day the 11th and 12th. Needless to say, I only made it through 2 1/2 hours of the one on the 31st and that was into the second week... These next two fall on what are going to be bad days. Mrs Hebert, My principal, is very understanding and is willing to work with me- bless her. Next work issue: I just don't see how I can teach the week immediately following my Chemo #4 (this is crummy time- I can manage 1-2 hour mini outings) So, I'm looking in to taking some time off (Family and Medical Leave Act) I know I can take a full week - that's my plan for the first week of school. Then it gets complicated because the law says I can take half days, but as a teacher, that is not so easy. I just need to have some time to build stamina. The good news: my reading kids did great last year so I will be receiving some grant money to help cover the time off.
Feeling pretty good today, and have an appointment for a Neulasta shot later. I've already gotten rid of the "red pee" - one of my chemo drugs causes you to urinate red for a while and you've got to push that stuff out so that it doesn't burn your bladder. Aren't you learning all sorts of useful, yucky things by reading this blog?
Thursday, August 7, 2008
Getting smaller...
I also seem to be getting a bit smaller. The scale is going down...
Today is CHEMO #3. We are officially half way through this part – the AC chemo.
We finally watched the new Hairspray film, which I really liked except that they should have cast a woman instead of John Travolta. The whole transvestite thing didn’t work- there wasn’t a context for it.
I’ve got Mum watching So You Think You Can Dance with me. Love this show! I drive Chris crazy and he can’t watch with me because I have to rewind and watch each number twice. One time to concentrate on each dancer, of course.
Tuesday, August 5, 2008
Eduoard Missed
Went for a massage yesterday and managed to do about 2 1/2 hours of activity before I shut down. We went to Massage Envy, Fry’s, Post Office, Panera (moms got an addiction), and the gas station. I can’t believe that Fry’s doesn’t have those little scooter baskets, that place is huge.
I think my thrush is gone. I’ve been taking this DISGUSTING medicine to get rid of thrush that was caused by all the antibiotics and stuff. I am now almost free. This stuff is GLICK-EY. Now I can take it once a day instead of 4x.
I’m starting to get used to a bald head. Maybe the wigs won’t get much wear. Mum and Chris have been telling me I have a nice shaped head but they love me so I figured they probably were lying – if only a little. My massage therapist, Merry, said the same thing and now it's easier to believe it. In fact she claims that if her head looked like mine she wouldn’t bother with wigs or hats. I see lots of people who are chemo-fied and end up looking kind of downs syndromish. I’ll wear a wig rather than look like that. I did find a new (to me) birthmark on the back of my neck/head.
Mum has been extremely industrious and managed to get 20 Continuing education credits this weekend! Even better, she did them online! She is becoming computer savvy. Now she should be soon re-certified to work in Texas. The folks at UTMB’s Rebecca Sealy really want her. These days she gets the most phone calls of any of us with all her recruitment people – she’s popular! Like I said earlier, she's a one toe in the water at a time type. Now I'd venture to say she's got almost a whole foot in! Looks like she's moving to Galveston.
Personal note: Denise & Cheryl Mae: I don’t have an email address for you so I can’t respond except on this blog. I am VERY glad to hear from you. Email me selenastair@gmail.com.
Other friends and family: I don’t necessarily have your e-mail addresses, so shoot ‘em to me!
Sunday, August 3, 2008
Little notes...
The breast cancer books tell you that a great secret is: to suck on Popsicles while having chemo to reduce the chance of mouth sores. We live on a tropical island. Even though I bought the kind that are sealed in plastic and wrapped them in a bunch in a cooler with some ice, by the time it came to suck, they were bags of liquid.
Self tanner is a great invention. I have now got a little more color on my scalp and look less like a new arrival at a concentration camp.
Saw a student of mine in the Walgreen's the other day and she just gaped at me - speechless. And let me tell you, she has probably never been speechless in her life!
I've had a weird thing lately where I wake up between 4 and 6 and I'm restless (heard that before?) so I'll get up go into the living room and proceed to start the day. At some point I fall asleep in my comfy chair until someone else comes in the room at about 10. I've watched/slept through a lot of morning news shows lately. New daily ritual.
Watched Nancy Drew (the newish movie) the other night. It was rather poorly written but cute just the same. I seem to have concentration problems these days, so reading or any kind of deep heavily plot driven film doesn't work. I'm back to being "fluffy" (Chris used to call me that) I think before it referred to my hair...
I hate being a sick person. I know I have to get over the guilt of asking someone to get me a glass of ice water- I just don't like feeling helpless. I am grateful that I have people who love me here to take care of me - and try to remember that it isn't for long.
Been trying to give up coffee and coke. I figure that I'm restless enough with out the caffeine. I get 1 cup a day and have been verrrry stingy with the coke. The flip side of the coin is that I am supposed to be super hydrating myself and I still don't like Gatorade. Yes, I drink water, but I'm supposed to drink a bottle of Gatorade a day - bleaccckhh. It seems a little better with ginger ale in it but all this sugar is nauseating. A little bit of coke ( from the can) has a nice tart bite! Lemonade is where I'm going now.
Healthwise: Some good hours some bad. It sucks to be me right now. If I balance the drugs out correctly I am doing all right. Since I don't like to feel stoned all the time I have had a few more bouts with nausea - Hey, pick your poison. I don't like the fact that I can't even walk down the hall of my house without hitting at least one wall - drugs! Or from the car to the doctors office and back without needing a 3 hour nap afterwards - chemo fatigue. I'm in the midst of what I'm told is the worst of it. I'll just keep pushing through. The light is there - if I squint I can see it.